Regional Centers Denying services

Seems like everything I say, write and think about lately starts with "in the current economic climate..." but the truth is little has changed for my kid at school or in the regional center. For five years, Regional Center has denied Augmentative Communication services and devices for my child at home. This year, they may provide them. It seems like they should have all along, under the Lanterman Act. That is also what Protection and Advocacy described in a Q&A for families. 

A friend and local advocate shared this thought with me:

"Now more than ever the process involves getting the denial in writing and then appealing it.  Every family is being asked to take a cut in services and only those that appeal are even getting consideration.  It's wrong, very wrong, but that is how the RC is operating currently.  Complaints to the Client's Rights Advocate at Disability Rights California (formerly PAI), should be copied to the case manager, the supervisor of the unit, and, in Concord, Ella Liggins, the Associate Director of Consumer Services.  In the main office in Oakland,  Pam Thomas is the Director of Consumer Services, and the Executive Director of RCEB is Jim Burton.  I recognize that it is a few extra copies to send but until the RC gets the message that parents are not going to stand for unreasonable cuts, it may be necessary.  Another critical part of this process is to be certain that all services are written in the IPP.  While this sounds like a given, many parents have discussed services with the case manager and they have never been transferred to the IPP. It sounds simple but it is not always done."

"The generosity of the voters"

Yesterday I went to Sacramento to speak to the legislative budget committee on what the committee chair sarcastically called "the governor's revised revision of the May revise" of the budget. 

The room was packed, standing room only, and the line went out the hall. During the public comment period, which lasted well over an hour, I joined citizen after citizen in appeals to our legislators. Each of us begging them not to cut education in our state further, describing the crippling blows our local schools and services have taken. No one spoke in favor of smaller government, less taxes or more cuts to education or health and human services. Yet the majority sat powerless to act, because of the tyranny of a few ideologues who have sworn a blood oath with their party to raise no new revenue, no matter what. 

In California, it takes a two thirds vote to levy any new tax. In spite of a 59% vote in favor of new taxes in our district, we cannot raise money to stem the hemorage created by the violent slashing of the state budget. People are literally jobless, homeless and hungry,  yet they sit smug and satisfied to do more harm.

One Republican member asked about the fraud, waste and abuse in In Home Supportive Services for the disabled that were, in his words "taking advantage of the generosity of the taxpayers." To him, I say this:

•  These services are so hard to get, I can't imagine fraud waste and abuse in the system. If there is, you risk killing the patient trying to excise the last of the cancer. Seriously, how much more can you spend trying to prevent unnecessary expenditures? 
  
• Second, charity and generosity are neither if they are given with resentment and used to shame the recipient. Generosity and charity exalt the giver and the receiver. That which you do unto the least of these...
  
• Third, and most importantly, programs for the disabled are not built by generosity, they are built by wisdom. You are likely to need these one day. 

As one great legislator once said, you will never be black, you will never be a woman, but you may easily become disabled on your way home. 

Many people have told me that my daughter was born so that I could learn-- if there is a force out there that guides the life experiences we have in order that we may learn compassion, humility, and generosity first hand, may that force bring those lessons to the Republican party of California. And may no one else need suffer while they are learning. 

school boards' face the impossible

I attended our local school board meeting last night to hear the latest in heartbreaking discussions of what to cut from the budget. This has been a resounding theme in our district, and many others for several years. Of course, we live in California, a state which, with the 7th largest economy in the world has the worst budgeting process in the world as far as I can tell. Still with our schools in 47th out of 50th in funding, we are still trying hard to reach 51 (allowing Puerto Rico to pass us). 

And our courageous Republican minority is still holding the budget hostage (we have a super majority rule here, so that two thirds of the state legislature has to pass the budget) insisting that they will not, not, not raise taxes. It might, they insist, hurt the economy. 

And it is not just the Republican minority in the state legislature. Parcel taxes in our district have failed the last three times we attempted to campaign. People were buying new SUVs and Wii's and wide screen digital TVs and voting down parcel taxes. I guess all that spending was good for the economies of the companies manufacturing these goods-- like Sony, Toyota and GMC. At least American car companies benefitted from all our spending right? And it provided good jobs, with full minimum wage jobs and no benefits or security for retail workers at good retail outlets. 

But I am confused. 

Our govenor lowered taxes, as promised in his campaign to recall the previous govenor, and the economy does not really seem to have gotten better in the last couple years...

Hmmm. So i want to try and think this through. Cut the budget further and what are the results? More people lose their jobs and can't make their mortgages. More homes go into foreclosure. More banks struggle. There are no jobs right now, so more people need general assistance, medicaid and food stamps, (which are also being cut, in order I guess to stimulate the economy) Shelters and food banks are already overwhelmed so I guess those newly homeless people will just have to live under the bridges, which actually are kind of crowded right now...

so how does all this budget cutting help,  exactly?  Any one?

We have already had, for years, kids going around the neighborhood, standing in lines at the grocery store and at the transit stations begging for donations or selling candy and gum to support music, art, sports, and yes, inconceivably even science programs for school. Every time I see them, I am ashamed. I am ashamed of my community, my state and my country. We should be taking care of this, not them. Why are our children forced to walk the streets begging for money for their schools? That seems fiscally irresponsible. Or some kind of irresponsible. 

I am proud to pay my taxes. I would pay more. The amount of money we pay in property taxes would not even cover tuition for one of my children in private school, much less three. And that tax money is supposed to cover a lot of other things, like 911 services, road building, medical and dental insurance for children...

In the Monty Python lampoon the The Life of Brian, they lampooned the anti-government stance. "What have the Romans ever done for us?" asks one of the revolutionaries of Judea. The others chime in, "Well, aqueducts." The first guy pauses, and says, "Well, besides aqueducts!?" After some arguing back and forth the list comes to include most of civilization: aqueducts, schools, sewers, health care, roads, trade... and so on. And after the long list, the first guy finally says, "Yeah, but besides all that?"

So besides dams and aqueducts, navigable harbors and water ways, vector control, health care for children, the elderly and disabled, k-12 schools community colleges and universities, roads, bridges, street lights, public utilities management, pollution regulation, public safety, fire fighters, ambulances, trauma centers, parks and recreation services, water treatment and sewage, farmers markets, street sweeping... what the heck are we getting for our tax dollars? Yeah, but besides that...

I am proud to pay my taxes and do my bit. I wish to never see another homeless family, another homeless veteran, another mentally ill person soiled and sitting in a doorway, another child with bad teeth or another student begging for money for her school. It would be worth not getting my kids an X-Box for that. Maybe they would even get some exercise and read without one. I wonder what others would give up.  And get. If we did. 

Fund the schools. Some day this generation of kids will grow up. And I don't think they will forget what we did when it was our turn to be responsible for them.